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Posts Tagged ‘seizures’

This post will be at the top of my blog till March 29th so make sure you scroll down to see new posts. Thanks!
The National walk for Epilepsy  I blogged about in November is a week away, March 28th, in Washington D.C.  If you can participate I urge you to, if you can donate $1, [...]

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I will be keeping this post at the top of my blog for November so make sure you scroll down to see new posts.  Thanks!

 Some of you may not know November is Epilepsy Awareness Month.  My daughter Meghan (otherwise known here as Meggers) is six years old and has been living with Epilepsy since she was about a [...]

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OK so I’m super excited, I set up an appt. with our old neurologist for next Monday.  Yep, he’s back, accepting patients again and Meggers is one of them.  For those of you who may have just tuned in my daughter had a brilliant neurologist who followed her from about a month of age till [...]

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On one of our first trips to the Children’s Hospital for Meggers seizures we met and became friends with The Kuhlman Family.  We met because their son Luke and our Meggers shared a room together, they were the same age and shared the same birthday.  It was as if god had put us together so we could help each other get through that [...]

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Today we had an appointment with the neurologist to discuss weaning the Phenobarbital and seeing if the Keppra will keep Meggers seizures at bay as a solo med.  TOTAL DISAPPOINTMENT!!  Let me go back to yesterday for a moment.. I get a call from the neurologists office to confirm our appointment for today telling me the visit [...]

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My hubby took our daughter to Adventure Park a couple weeks ago and I’ve been meaning to blog about this however I need to give a little history for you to fully appreciate the story.   When Meghan first started having seizures they were focal and consisted of hand and wrist jerks.  So on to the [...]

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Having a child with epilepsy I was a little annoyed at the response given by Gnarls Barkley in regards to his new video “Run” that failed the Harding Test, guidelines established to prevent TV images from triggering epileptic seizures.
“I don’t know exactly what’s going on, but we’re having issues. I think (the video) is cool. [...]

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